As the situation continues to evolve with the spread of the novel coronavirus and COVID-19 infection, we want to let you know that you are not alone. We understand this is a stressful time for everyone, especially for people of color. This is the time for family, friends and community support. We are all here for each other. Especially in this critical time, we will continue to provide information, education, resources and advocacy. We encourage everyone to follow the advice of their providers and the measures implemented in your local community. Our thoughts continue to be with all of you during this extraordinary time.
Continuing our work during COVID-19
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Who We Are
Rare Diseases Matter Too is a nonprofit organization dedicated to promoting awareness of rare diseases amongst Black & Brown people and other minorities. Our mission is to facilitate health equity through the elimination of disparities in both treatment and diagnosis. We achieve this goal by providing education, awareness and resources specifically curated towards the minority population.
We works with government, researchers, clinicians and the health industry to promote research, better diagnosis, improved treatment and services for all rare disorders amongst the minority population.


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Thank You
We accept online credit card donations using Visa, Mastercard, American Express or Discover card. Use our convenient donation form* or mail us a check to our office Address:
Rare Diseases Matter Too
P.O. Box 4433
Upper Marlboro, MD 20775
Ways you can support our services include:
✓Making a recurring gift monthly or every quarter
✓Making an annual donation as a general gift or a tribute gift.
✓No donation is too small.
Some things to note about your donation:
– Donations are tax deductible
– 90% of all donations go to support our efforts and services
– Donations are accepted online, via mail, by telephone or fax.
*Payments are processed securely through PayPal. As a subsidiary of Taking Effective Action Inc., all donations are processed through that account.
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