Helping to promote awareness amongst Black & Brown People and other Minorities to facilitate Health Equity for all through the elimination of disparities.

Continuing our work during COVID-19

As the situation continues to evolve with the spread of the novel coronavirus and COVID-19 infection, we want to let you know that you are not alone. We understand this is a stressful time for everyone, especially for people of color. This is the time for family, friends and community support. We are all here for each other. Especially in this critical time, we will continue to provide information, education, resources and advocacy.  We encourage everyone to follow the advice of their providers and the measures implemented in your local community. Our thoughts continue to be with all of you during this extraordinary time.

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Who We Are

Rare Diseases Matter Too is a nonprofit organization dedicated to promoting awareness of rare diseases amongst Black & Brown people and other minorities. Our mission is to facilitate health equity through the elimination of disparities in both treatment and diagnosis. We achieve this goal by providing education, awareness and resources specifically curated towards the minority population.

We works with government, researchers, clinicians and the health industry to promote research, better diagnosis, improved treatment and services for all rare disorders amongst the minority population.




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Thank you for your interest in our organization. Please use the contact form or reach us by phone or email and we will get back to you promptly.

P.O. Box 4433, Upper Marlboro, Maryland

PHONE: 240-394-8327


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